Hypoplastic Tubular Breasts

hypoplastic tubular breastsHypoplastic Tubular Breasts

There are tons of PCOS symptoms (see PCOS Symptoms list) but Hypoplastic Tubular breasts or just tubular breasts are a more rare symptom. I’ve spent some time researching and Google’ing images of this condition.

Many women don’t even realize they have tubular breasts, I have read countless stories online about women not even realizing it until they were told by a partner or noticed a difference when looking at other women’s’ breasts.

What are Hypoplastic Tubular Breasts?

Hypoplastic tubular breasts (or tuberous breasts) are breasts that are small and underdeveloped, saggy, have a high breast fold, sometimes spaced far apart and have large and puffy areolas. The areola placement is usually at the end of the breast, as opposed to the center of the breast. The breasts do not develop properly in puberty and as a result are left underdeveloped. As the name implies tubular breasts are tubular in shape.

Hypoplastic tubular breasts can affect one or both breasts, meaning you might have one breast smaller than the other.

See Hypoplastic tubular breasts Wikipedia definition.

PCOS does not cause tubular breasts, rather there are some links between the root cause. There is no definitive cause for PCOS or Hypoplastic tubular breasts, but they more than likely come from the same string of genetic mutation.

Do You Have Tubular Breasts?

Look at your breasts:

  • are they small, perhaps disproportionately to your body size?
  • are they cone shaped, almost pointy looking?
  • is your areola large and at the bottom of your breast?

If you answered yes to all 3 then chances are you do have Hypoplastic tubular breasts.

Treatment for Tubular Breasts

The treatment for tubular breasts is limited, there are no pills, supplements or anything natural to cure it.

There are really only 2 options to correct tubular breasts:

Option #1- Have corrective surgery (some insurance carriers may cover this). In 2012, 10% of all breast augmentation surgery for women under 18 were to correct tubular Breast Deformity. (Source: American Society for Aesthetic Plastic Surgery ) Typically the surgery involves implants, resizing of the areola and a breast lift. Do a quick Google image search to see before and after pictures.

Option #2- Live with the condition, obviously any kind of ‘deformity’ (not my term- just the general term the medical world uses to describe tubular breasts) is hard to live with and may affect your self esteem. Look to online support groups and forums for general questions and advice.

Hypoplastic Tubular Breasts and Breastfeeding

Unfortunately tubular breasts can wreak havoc on your attempt to breastfeed. Most Hypoplastic tubular breasts either make very little breast milk or zero breast milk. This is something to be aware of and plan for if you’re pregnant. You’ll want to make sure you have formula or another source for breast milk. Taking breast milk supplements and tea might help, but it’s still best to be prepared. PCOS also contributes to low milk production.

 

Do you have tubular breasts? Leave some comments with any advice for anyone else who may be affected! You can of course remain anonymous if desired!

If there is a specific PCOS symptom you’d like more info on- add it to the comments section and I’ll get it up for you!

 

61 comments

  1. Shelby says:

    I think I have sightly tubular breasts, however my nipples are placed higher up. But mine are smaller and kinda pointy. If you have this do not be ashamed. It’s just another normal breast shape, that’s perfectly okay to have. It’s just as beautiful as the next shape. It just doesn’t fit society’s idea of perfect. I use to cry about mine but I’m finally coming to terms with it. I’m glad I didn’t get a boob job now. (:

    • PCOS Girl says:

      Love your comment!!! I think they’re are a lot of women out there that need to here this! We’re so used to societies idea of a perfect body, it’s not realistic. Boobs and Nips come in all different shapes and sizes! And let’s be honest- I don’t think guys care one way or the other.

  2. Jo says:

    I have PCOS and tubular breasts and up until a few minutes ago I didn’t know they were related. I’ve always known my breasts were different than everyone else’s and I’ve always had huge insecurities about them. I’ve always wanted to get corrective surgery. I have a 2 year old daughter and their shape made it difficult for me t breast fees her, I was only able to do it football style with her under my pit, if I tried the conventional way, she didn’t latch on, my brrasts are too far apart and to the side for her to latch properly. I was pumping at work to keep up the production of milk but at 3 months I had to add formula to her diet too. I was only able to breast feed her for only 6 months, and my milk supply was scarce.

    • PCOS Girl says:

      I’ve heard this quite alot! At least you were able to breast feed for 3 months! Many women can’t even do that with Hypoplastic breasts.

  3. anon says:

    I have tuberous breasts but no doctor ever told me. I had to figure it out on my own. I had never even heard of it before. I think doctors are afraid of hurting women’s feelings or making them feel bad about their bodies. I wish I would have known or a doctor would have warned me, because I could not breastfeed almost at all. It was very dangerous for my baby. The lactation consultants kept telling me everything was “going great” and not to supplement with formula because it would ruin the baby’s demand and suction strength. Meanwhile, my baby was starving, wasting away and I was too inexperienced as a mom to realize it. I thought my baby was beautiful and perfect. Thank goodness for the pediatrician, who clued me in that the baby was skinny and losing even more weight. I was 36 at the time. In all those years, no doctor ever mentioned my breasts or warned me. No breastfeeding books or classes brought it up, either. Thank you for spreading the word.

    • PCOS Girl says:

      I have come to realize that doctors are kinda clueless, or lazy- lol! They never have answers to my PCOS questions. I’m usually filling them in. I went through 3 endocrinologists before I found one that knew and was educated with PCOS. I’m so happy your baby is ok, and that you figured it out in time!!! Even without hypoplastic tubular breasts, PCOS makes breastfeeding hard! I have friends with perfect breasts, but suffer PCOS and their milk wouldn’t come in.

    • Gladiola says:

      Wow! That sounds almost exactly as what I experienced with trying to breastfeed! I was producing very little supply and my son was wasting away while the so called lactation consultants & idiotic pediatrician said I should keep trying to breastfeed. Finally, I just decided to stop & give my child baby formula! Not one medical professional said I had hypo plastic tubular breasts! But now researching it, I know I do. They’re disproportionately smaller than the rest of me & cons shaped, they never changed size during pregnancy & I had a very hard time breastfeeding. I have to be honest and admit I wish I could get a breast augmentation to help with my self esteem in that area of my body. I’m just glad others out there understand. I wish medical insurance would cover the augmentation too

      • PCOS Girl says:

        I wish doctors, lactation consultants and nurses were more aware of hypoplastic tubular breasts and their limitations! So sorry you had to go through all that stress, especially with a brand new baby.

  4. Emma says:

    Hey ladies.
    I too have tubular breasts. I also was unaware that these two conditions were related but I always had a feeling that they had ‘something’ to do with eachother.
    I still want corrective surgery but it’s not covered in Ireland, which sucks! My boyfriend has never seen my breasts and I doubt he ever will. He says he doesn’t care what they’re like but I care. I’m embarrassed by them, I would love nothing more than to feel pretty and feminine. As for breastfeeding, I always said if I had a child id want to breastfeed but with knowing that it may be tough, I’m scared lol, although not at all surprised. I never thought my breasts would be a suitable candidate for breast feeding anyway!

    Thank you so much for posting this information. It’s opened my eyes a lot!!

    • PCOS Girl says:

      So many women have tubular breasts! Researching this and learning more about what actual breasts (not the airbrushed ones in magazines.. lol) actually look like was so eye opening! As for guys.. they don’t care- a boob is a boob- lol! The media has distorted what breasts should look like, they are all different. The corrective surgeries aren’t always great anywho, if you Google before and afters for hyperplastic tubular breasts, there’s really not a night and day difference. As for the breastfeeding, luckily there is such good high quality formula on the market now! I feel bad for girls with this condition who lived back in the day when formula wasn’t readily available!

  5. Brooke says:

    I didn’t know there was a condition related to this but I definitely have it. I breastfed my first for almost a month, my second for only 1 week. It was a constant battle to breastfeed. I was constantly going above and beyond to help increase my supply. Often times going to supplementing with formula. PCOS blows.

  6. Patricia says:

    I JUST had surgery to correct my breast on Jan. 15th, and it was painful, they look better, but are not completely normal or huge. I just wanted to have a better shape. My husband was the one who helped me through this, but I never knew what it was, I always knew they have not develop for my breast size was the same since I had started puberty.

    • PCOS Girl says:

      Patricia- I’ve had a few ladies message me about their ‘corrective surgery’. So happy that you had your husband to get you through it, sooo many girls are afraid/embarrassed and hide it from their boyfriends/husbands. But like I always say guys only see a boob, they could care less about the details 🙂 Did your insurance cover the surgery? I’m sure many others would love to know!

  7. erin says:

    Thank you for this! I knew I had them, but didn’t know that they could be corrected. I would love to know what insurances cover this! If you know of any, could you let me know? It’s awful how we all had to find out on our own these things about why we have lived our whole lives different from everyone else. I never even knew I had PCOS until a year ago and I’m 32.

    • PCOS Girl says:

      Hi Erin! The insurance will totally depend on the magic your doctor can work! Corrective surgery should be covered, but it’s such a fine line! The corrective surgeries I’ve seen have been nipple resizing and breast augmentation to correct size and alignment. But, it is a major surgery compared to simple breast implants. Due to the location and size of the nipple (for most tubular breasts) they will need to do a breast and nipple lift. Even then the nipple will more than likely be larger than average and lower on the breast.

      Try to find a great doctor that will really push the insurance company to cover the procedure.

  8. Hope says:

    I recently read an article about PCOS and I’ve since been researching PCOS because I have all of the symptoms and I recall having the symptoms since I was about 12 when I started having irregular, heavy, never ending or non-existent periods, facial and body hair etc. I came across your article because I also had/have tubular breasts. I had surgery ten years ago (when I was 20) to “correct” my severe tubular breast deformity with implants, a benelli breast lift and areola reduction. At the time, I didn’t know there was a name for my condition and my surgeon didn’t even tell me I had a deformity. In fact, he asked me if I had ever breastfed children. I have never been happy with the results of my surgery although admittedly, they do look much better than they did before, but they still look bad plus I have ugly scars. I have read that there are procedures that can be done to correct tubular breast deformity without the use of implants or breast lifts (and no scars) and I wish I would have gone that route. On a positive note, even after the surgery, I was able to breastfeed my daughter for 15 months! I’m going to spend more time going through your website. I have so many of the symptoms described here and I’m curious to know what could be done to improve my quality of life.

    • PCOS Girl says:

      I feel soo many women have no idea that they have this ‘breast deformity’ and that doctors don’t mention it or bring it to their attention. To ‘fix’ this condition requires so much more than a standard breast enlargement. Thank you for sharing your story!!

      Also- Congrats on being able to breastfeed! And a bigger congrats on having your daughter!! Both of those are PCOS miracles- lol! I have lots of tips on controlling PCOS with diet, acupuncture, supplements, etc. It’s an every day struggle!

  9. Tina says:

    it feels so good to know I’m not alone! I have Tuberous breast and PCOS as well and had to find out by my own research. I have 3 kids. Non of which j was able to successfully breast feed. Now I’m trying to decide if corrective surgery is worth it or not! I want beautiful breast SO bad, but have to consider all aspects of getting them. Thanks so much for this forum. I’ve always known the two had to be connected!

    • PCOS Girl says:

      Well congrats on having three babies!! That alone is so tough with PCOS. Definitely consider all aspects and consult with multiple surgeons. I would go for a specialist for reconstruction as opposed to a general plastic surgeon- if you’re going in the corrective surgery direction. Keep us all posted!!!

  10. Jo says:

    I’m 38, was diagnosed with pcos 6 years ago and have just had my first child through ivf.

    Today, through research into why I can’t fully breastfeed my baby , I realise I have tubular breasts.
    I have never liked the shape of them and the size although not tiny, never seemed in proportion. Always joked to my husband about getting a boob lift. Since getting pregnant, they grew a little, but this has only emphasized the cone shape with nipples pointed to the floor.
    no Dr has ever mentioned this, or even connected my pcos with my scarce milk supply and just keep telling me about supply and demand despite feeding 24/7 for the first 2 weeks solid with no joy!

    • PCOS Girl says:

      It amazes me how every 1 in 10 women has PCOS, yet Doctors are not studying the symptoms or explaining the symptoms as much as they should.
      It’s also very stressful to have a newborn and being told to breastfeed on demand, when you simply cannot produce the milk volume you need.
      Tubular breasts need more publicity so others can understand what they have and what to expect with them. It would be nice to be prepared for the lack of milk and educated about hypoplastic tubular breast condition. Congrats on your new bundle of joy 🙂

  11. amy says:

    Im 18 and realised my breasts are tubular, they get me down so much and im scared to get intimate with anyone incase of judgment or seeing my body as childish. Im unsure of what to do, ive heard they can change shape later on, particularly as I was a late developer, starting my period at 17, but im unsure about surgery, at my age its like i havent finished growing, thats what it feels like anyway.

    • PCOS Girl says:

      I would definitely wait a bit to make any decisions on surgery since you’re still so young. As for intimacy, I wouldn’t worry about it, guys don’t care about about breast specifics- lol. A breast is a breast to them. If you act confidently then they’ll know no different. If you do decide to go the surgery route- make sure you go to multiple doctors for consultations and make sure they all recognize that you have tubular breasts, the surgery will be different then traditional breast augmentation.

  12. Godsfavor says:

    I have PCOS and Hypoplastic Tubular Breasts. I am 22 years old, and this condition makes me feel very uncomfortable. I plan to have kids in the future and want to breastfeed. I have Emblem Health as my Insurance Provider, does anyone know if they cover this procedure? Also, will I be able to breastfeed after the procedure?

    • PCOS Girl says:

      I’m not sure about your insurance- you should call them and see if you can present your case! As for the breastfeeding, PCOS already hinders milk supply. So whether you have the procedure or not you may not have the milk supply you need. When consulting with doctors make sure you let them know that you want to breastfeed- they should be able to let you know if you’ll potentially be able to or not.

  13. Malini says:

    At my first gyn exam at 18, I had a male doctor who exclaimed loudly “Do you know your breasts are different sized?”. As if I would have just neglected to see that myself. I don’t think he knew about Tubular Breast “syndrome”. I didn’t know it was an official deformity and thought I was alone and weird for many years.
    I am now 35 and have gone back and forth about getting surgery done, mostly because I can’t afford it. This has really forced me to try to accept my body as is. It is really elfin hard and I take one step forward, two steps back all the time.
    However, I want to say to others with this- Be BRAVE!!! There are some jerks that may not like your body, but even if you had a more typical body, there are some people that might not be into it. But any man worth your time will not reject you for this.
    It takes time and effort but try each day to love your breast a little bit more. It can be nerve-racking but consider telling your current or next lover about your breasts (you don’t have to show him/her immediately, they can look it up online).
    Personally I know I am lucky in some ways but it is also because I put myself out there that I found a man who loves my breast more than I do. Not that he wouldn’t have loved them if they were more typical. But the fact is, he loves ME, and my breast are part of me, so he also loves my breasts and body.
    When I chose to tell him about it, I was scared and upset but he actually was just excited that I was showing him my BOOBS! He said he could see they were different but he still thought it was sexy.
    I hope this helps someone out there to consider that we don’t have to be ashamed, though it is hard not to be with the messages we get about femininity and standards of beauty in our society.
    Maybe one day I will change my mind and get surgery, but for now I am doing my best to love and accept my body as is!!!!

    • PCOS Girl says:

      This is awesome!! That’s what I always say about guys – a boob is a boob- they don’t care lol. The other great thing here is that we’re seeing that there are tons of different shapes and styles of breasts, our image of a perfect breast is distorted because all we see are movie stars and models. The reality is nipples come in all shapes and sizes and so do breasts!

  14. Eden says:

    Hi iam one of those woman who is suffering from pcos syndrome. iam really worried and my breast size is also very small i dont know. what to do plsss give me some idea about it .

    • PCOS Girl says:

      Hi Eden! I would consult with your doctor. There is no treatment for hypoplastic breasts beyond corrective surgery. As for your PCOS make sure your doctor gets you on the right meds and a good treatment plan to control your PCOS symptoms.

  15. Sharon says:

    I am 39 and had corrective surgery for tuberous breast when i was 28. My ins. did not pay for it so it was expensive and painful. I have PCOS and also had my right ovary removed in 2009 due to a cantalope sized benign tumor. When i found out i had PCOS i did research and was in aw of all the things that i have complained about were part of it. The only thing iam not is hairy, im the opposite. Not everyone fits it though. I just had my implants removed last month and could not wait. Ive been dealing with breast pain for a few years. Due to the reconstruction internally and crescent lift changing of breast shape and size i had alot of scar tissue. Overtime they were hard and painful. For those girls who are not happy with their tuberous breast i would tell them not to do it. IMPLANTS are not permanent and when you have to get them out your breast look worse then before the surgery and then you will need more surgery. i decided to just have implants removed without another lift which i desperately require.My ins. paid to get them removed but anything else you do have to pay for, lift etc. The shape of my breast seem funny, since they did have to reshape my breast wall when the implants are removed you just get extra skin, the old shape of my breast is visable too, not pretty but you live and learn. For all those girls who are not happy with the breast i would say dont do it its not worth, at first it seems great but the scars the pain and then having to have more surgery arggh. i wish i could go back but i cant. Please love yourself and how God made you!

  16. Cristy says:

    I just wanted to share on here that I have tubular breasts but I still have a quite a bit of breast tissue. When I had my daughter my lactation consultant informed me about my breasts and that I may not be able to breastfeed. Well guess what… we’re going on 2 1/2 years of breastfeeding and I had no issues along the way. No clogged ducts, no mastitis, no cracked nipples. And I actually had an over supply when my daughter was a newborn. It’s still very possible to breastfeed, ladies! Don’t give up!

    • PCOS Girl says:

      That’s so encouraging and great to read!!!!! We always need to hear the positive as there tends to be so much negative!!

  17. Lilac says:

    I too have PCO and tubular breasts (very interesting connection). I had them corrected when I was 19 (in 2009) and honestly – it is the best decision I ever made. The surgery was a breast lift without implants, and amazingly enough the result is really good even if my case was pretty severe. My nipples are still slightly larger than standard, and I have thin, white scars all around them. But the men I have been with since then never seemed to notice anything and have been really surprised when I told them about it. Just to say that some people can have good results without implants and big procedures.

  18. Dana says:

    Has anyone found a site pr something about insurance companies all over the world that cover it? I’d even concider briefly relocating for the visa to get the insurance for it!

    Also, where can I find info about fat transfer for TBD? Like after nipple reduction and breast lift, you got a fat transfer from another instead? Has anyone done it? Which country/city? More ideal than foreign objects in my body

  19. Preferably Anonymous says:

    I so appreciate this. I am not as strong as many of the lovely ladies here, and I thank you for your encouragement and courage. I am 24, and have known I have PCOS (with excess facial and body hair and irregular periods) for 14 years, but the tubular breast realization didn’t happen until age 18. My mother and my physicians only told me that my breasts were small but no one believed that they were irregular–little breast tissue on the underside and outside, wide set, conical). I wish I had this surgery before college because it is something I struggled with so much as I watched my friends who “blossomed” later than me grow beautiful full breasts, as boyfriends I hooked up with seemed disappointed once they’d take off my intense push up bras (which has caused low self esteem and an inability to finish during sex), and how unflattering my bikini pictures are. I constantly searched for sexy but not too low cut clothes when shopping because Lord knows I had no cleavage to display. I had to wear uncomfortable sticky bras any time I wanted even some cleavage, and oh my god did it itch when I removed them.
    Frankly, I hated my chest. I already had low self esteem from being overweight, the hair, the acne, and my height (I’m under 5 feet). I didn’t know why I couldn’t just have normal breasts. Even now, as a person of science, I’m frustrated that there aren’t scientific answers. I scheduled consultations with surgeon after surgeon but chickened out. But I’m happy to say that as I type this I am sitting with bandages around a slightly larger bosom, courtesy of my breast augmentation surgery this morning!! I don’t know what my new breasts will look like yet because I can’t remove the bandages for 2 days, but the surgeon didn’t go with expanders and instead went straight for implants! I am so excited and I hope you all can send a fellow PCOS sister some love and well wishes because I am so ready to have normal breasts now. I want to and need to feel confident in my own skin. And maybe this wasn’t the best way to get there but I needed this. Again I say how proud I am of my strong sisters who don’t need surgery to feel comfortable in their own skin, but I hope you can understand that I did.

    • PCOS Girl says:

      I’m so happy for you! Whatever it takes to make you feel good about yourself! You’re not alone- many women have surgery to correct breast issues- breasts are a big deal- lol! There are probably many readers here who are encouraged and can relate to your story!!! Thanks for sharing!!

  20. JC says:

    I too have both PCOS and tuberous/tubular breasts. I am nearing 40 and am fortunate that my partner is very loving and finds my breasts attractive, but I do not and I have been extremely self-conscious of them for decades. I wish I could afford surgery but I can’t even pay my bills and we desperately want a baby but need to do IVF, which we also cannot afford. PCOS sucks! Trying to fix all the issues that come with it are so expensive! Doctors, tests, medications, hair removal, acne treatments, plastic surgery, IVF- it is insane! I’m just so afraid I will pass all this awfulness on, if I am lucky enough to afford IVF before it’s too late. Just needed to vent to those who can relate. Peace and love, my PCOSisters!

    • PCOS Girl says:

      It’s soo expensive! I got pregnant naturally and had a failed IVF- go figure. I did find that when I turned to supplements, low carb/sugar/no dairy diet and working out that many of my symptoms went away- so that saved money but was really hard to adhere to- but I did it. We’re all here for you and we all deal with the same things! 🙂

  21. K says:

    I am 61 years old. I have tuberous breasts and have had serious self esteem issues related to my body image my entire life. This condition has made me sad and ashamed of my body throughout my time as a teenager up to now as a senior citizen. This condition has impeded.my libido and inhibited intimacy in my marriage.

    Additionally, I had symptoms of PCOS. Late start for menstruation. Very light and short periods, infertility and menopause before the age of 40.

    I would like to have corrective surgery. Yet, I wonder if I am too old. I wonder if my insurance will cover corrective surgery.

    As I have disdained my body my entire adult life, I am not in shape. My attitude has been “why bother?” So I wonder if I am even a viable candidate for corrective surgery. I am in good health but have flaccid muscle tone.

    In general, I am ashamed and depressed about my body. No amount of exercise could improve the appearance of my “tube sock” breasts. At my age is it even worth it to try to have corrective surgery to give my breasts somewhat normal appearance ? The rest of me is a saggy, flaccid mess of a 61 year old woman.

    Even if insurance would pay for surgery, how odd would it to be to have perky breasts and saggy upper arms and doughy thighs?

    Any thoughts? Mostly, I try to avoid mirrors, swimsuits and lingerie. All in all, my identity as a woman has been adversely affected by this condition. Truly sad and disappointed about my sexual identity my whole adult life.

    Can anyone relate?

    • Anna says:

      Same here! When I was young, I felt so ugly….then I had my first lover and for some time I felt normal….but years ago my actual boyfriend told my that my breasts are boaring, not atractive, since that time I’m sad and ashamed, he said that he doesn’t love me fore my body but for my heart, that beauty fades… but the pain that I have felt from that day never goes away.

      We need someone to make us feel pretty, maybe that would make us believe it.

  22. Tammy says:

    So happy to of found your website. I too have tuberous breasts that I hate. I am now wondering if that may have something to do with my difficulty I had with breast feeding my two children. As much as I have wanted to go under the knife to correct this, the risks far outweigh the esthetic looks of them. Dont know if you have heard of fascia blasting…but now I am wondering if that would help to correct the shape of them naturally. I am going to look into it now.

  23. Kate says:

    I also have pcos with all the symptoms , I don’t know if I have tubular breast but my breast are different size and very flat, and my nipple are inverted it’s like they never really grow . When i am wearing a bra it give me some shape but without it there is nothing and people usually think I’m a guy because I have a lot of hair on my chest and my face . I really feel like I should stay single because I feel ashamed of my body

  24. Bethan says:

    Hey, I’m 17 I live in the U.K. And I most definitely have this issue and it destroys me. I’d like to get corrective surgery for it/ deal with it until then and I need some help.

    • PCOS Girl says:

      Well you’re not alone! If you go for corrective surgery just make sure to go to multiple doctors and ask to see their before and after pictures. But just remember many women have breast issues, it seems more common than not.

  25. Emma says:

    I’m 15 and I think I have finally realized that I have tubular breasts. I’m too afraid to say anything to my mom or my dad about it so i can get it fixed, but I am very scared to get close to anyone in fear that they will judge me. I’ve gotten to where I wont even wear a proper sports bra and will instead wear one with push up padding in an attempt to make by boobs look natural.

    • PCOS Girl says:

      Chances are your mom, or most likely your paternal grandma might also have them. I would try talking to your mom. Just remember- you are not alone!

  26. Angie says:

    I just googled ‘pcos tuberous breast’ and made the connection. I’m pushing 50, now, and am happy enough to have smaller, more youthful breasts — but on a scale you can find here, I’m a Type I, and when I was in my teens/20s, I was decidedly a Type II:
    https://www.researchgate.net/figure/221921012_fig3_Fig-3-Von-Heimburg-classification

    I just have this huge effort to FINALLY get a bra that FITS. My whole life, due to scoliosis (which is, indeed, related to PCOS: dunno if it’s related to tuberous breasts, too, yet) I couldn’t intersect with a bra that fit: not counting sports bras.

    I’ve lost some weight, and gotten over a serious thrift-store binge for a few years of developing a wardrobe I like, and I’ve consigned a bunch of clothes. Finally, I had a girlfriend in to go through my closet with a fine tooth comb and get rid of the last of what should no longer be there, due to style/age/color/fit. I’ve learned a LOT on my own about what fits me, but having someone with a practiced eye and garment-making skills is useful: both to confirm what I’d figured out on my own/give the ‘why’ in garment-construction terms, and make observations.

    She told me I really needed to go get a couple bras that REALLY fit me, though, for formal wear and a few other things — which feels like being sent for the Holy Grail. Over 20 hours of internet research, and one deplorable ‘fitting’ later, I found The Healthy Bra Company, very local to me, and got a postural analysis, too. She told me, from what I wrote on her 3-page intake form, and seeing me, she knew cup size was going to be the hardest thing. Doh! I have two decent-fitting bras now, and a posture vest, and a LOT of clues on how to find a bra that fits me, now, but my entire life has been further complicated by just another weird genetic anomaly, like my scoliosis, maybe my PCOS. Since I’m now ‘borderline’, versus how I looked as a much younger woman, I don’t have the same feeling of awkwardness I used to have, but it’s surely been another strain.

    Here’s some actual science:

    https://www.researchgate.net/figure/221921012_fig3_Fig-3-Von-Heimburg-classification

    “The etiology of tuberous breast remain still unclear. No genetic disorder are been associate to this condition and no hereditary transmission is observed. The pathogenesis of this breast deformity is linked to an aberration in thorax superficial fascia that blocks the normal expansion of glandular tissue, Fig. 2. Normally the breast glandular tissue originate from the mammary ridge, which develops from ectoderm during the fifth week., most part of this ridge disappear, except for a small portion in the thorax region, which persists and penetrates the underlying mesenchyme around 10 to 14 weeks. The glandular development remain quiescent until puberty. During puberty, the mammary tissue is contained in the thickness of superficial fascia.”

    https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3328117/

    “after histochemical confirmation, we believe that the etiopathology is a result of an alteration of collagen deposition. Again, these alterations appear to involve nearly all the breast stroma and not only the fascia, making tuberous breast a complex and multilayer malformation.

    The presence of tuberous breasts in males, in which the stroma is the main component of breast parenchyma and where we demonstrated altered collagen deposition, in addition to the similarity between male and female subjects, further support this theory.

    Moreover, the presence of tuberous breasts in homozygous twins examined in our study suggests that an underlying genetic component promotes altered collagen fibre production, implying familial transmission of the pathology”

    Hope the about is useful, if not consoling. But we’re not alone! 5 – 10% of anyone seeking a breast plastic surgery likely has this concern. Men get it — the 2nd paper shows images of identical twins males that had surgery themselves to correct it.

    Big virtual hug.

  27. Tyler Peacock says:

    I just wrote a blog post detailing my experience with this deformity, and how it’s affected my self esteem. I’m very healthy conscious, and battle various health issues. I assumed that it was linked to some sort of genetic abnormality, because my kidneys are also underdeveloped. I wonder if it could be associated with MTHFR? I’m trying to go with option 2– live with it. I know that breast implants would probably just exacerbate my health issues, so I’m working diligently to overcome the body image issues the deformity has induced. Anyway, I enjoyed the content and the comments. 😀

    https://www.modernvenus.org/single-post/2018/01/22/I-am-not-the-shape-of-my-body

  28. Louisa says:

    So I’ve just discovered that I had tubular breasts having seen it on tv. I just wanted to share my positive breastfeeding story – during my first pregnancy my breasts finished their development. I went from an A cup to a full D (and then some when the milk came in). My boobs were unbelievably sore while they grew, and I’ve got stretch marks on top of stretch marks, but I had no problem breastfeeding either child. After the milk dried up from the first pregnancy my boobs didn’t go back down to their original size, but stayed as a D cup, and I no longer have the puffy areola so I know they are now developed.
    I just wanted to share something positive in case it helps someone else.

    • michelle says:

      I had a similar experience breast feeding with tubular breasts. I went from a b to a dd, loads of milk and they looked pretty normal except for my puffy nipples. After breastfeeding my second though I am a AA cup. I am slightly more rounded at the base of my boobs but they still look similar to how I was post kids:(. It is very hard to feel feminim and beautiful with this condition. Intimacy is very hard.

  29. Megan says:

    Hi I’m 28 and like many other women have never heard of this before but I tickets all the boxes as to describe what my breasts look like.
    I thought my whole life that I just had small breast but after having a child and trouble breast feeding and my breast not getting bigger that something was different. Yes midwives just tell you to keep trying and I have never been told about this untill now.
    I am now pregnant with baby number two and feel just lucky enough to be a mum. I will be bringing this up with my midwife at next appointment to see what she has to say about it., Thank you all ladies for sharing your story, it makes me feel like I’m not the only one. ?

  30. AJT says:

    I have PCOS and I had tuberous breasts until I had plastic surgery at age 35. Before that I had very little breast tissue and just giant, saggy areolas. My breasts were asymmetrical, too. I have had PCOS symptoms since age 10 when I hit puberty, including developing breasts that were tuberous. I hated them. I just lived with it, though. It is weird because since I felt they were ugly, the breast area never was an erogenous area for me. I just wore padded bras and got on with life. I got pregnant without medical help, so even though I am hairy, pimply, oily, with tuberous breasts, and cysts on ovaries, I was not infertile somehow. However, I could barely produce any breast milk. It was that above all that made me really hate my breasts. It made me feel like my breasts were ugly and useless. There is this 007 “real breast” website that has hundreds of pictures of breasts of all shapes and lengths and sagginess that the site labeled “normal” as a way to promote body positivity in women and counter entertainment media “perfect breast” imagery, but then they had a single pic of tuberous breasts and that was labeled “abnormal.” That made me sad and angry. At age 35, I began a series of 3 surgeries to correct my breasts. The first was a fat transfer. It didn’t make them look different, just bigger. Then I had an anchor breast lift with more fat transferred. Then a year later I had fat transferred only into my right breast a third time to make them both more even. Now they look just like round, pert breasts like what I would have had if I had a nice breast shape at age 17, except…I have the Frankenstein anchor scar AND because my areolas were so large, the plastic surgeon had to leave some of the areola on my breasts when he reconstructed them during the breast lift. I had my nipple areola complex made into the size of a quarter coin, though. But the anchor scar and leftover areola tissue along parts of the scar is ugly. However, I love my reconstructed breasts. It is SO much easier dealing with bras and clothes now. It’s been a few years since the surgeries and my weight hasn’t fluctuated much, and the fat transfer has lasted and my breasts are still nice and plump with a lot of lower pole and high nipples. Insurance covered all aspects of my surgery except the breast lift itself, which was around $5,000. Since I am 40, I realize most women my age don’t have what are socially considered “perfect breasts” anyway, so I am okay with having the creepy scar and leftover areola tissue along the scar. My plastic surgeon said it would be easy to get rid of the extra areola tissue along the scars and refine the scars a year or two after surgery but I haven’t even bothered because I don’t care about it. I still feel cheated by fate for having lived with deformed breasts I hated during my younger days, but I like my breasts now. They look good in clothes and feel plump and weighty and within the range of “normal.”

    • summer says:

      This makes me happy! Thanks for sharing your story with the community! Many women are in your shoes and it’s important that they hear the good, bad, and everything in between!

  31. Lisa says:

    This is a subject ive always been interested in and in reading everyone’s comments and the article it seems there really is a correlation between posture, pcos and tubular breasts. Like everyone else in the comments, i always knew something was different about mine. I just assumed it was due to being a late bloomer or the fact that my mother was a slender woman who didnt have big boobs until after she had her children but stealing my sisters bras to maintain a shape versus enhance my low cup size should have given me a clue something was wrong. When i bend over it looks like i can pipe frosting out of them and bake a tasty cake. You can either be sad at that or let it make you smile. Some women are just all cleavage and others are all aerola and nipple. I tend to have the best luck in acceptepance from the opposite sex if the man is a big nipple type of guy and thats olay with me, im all nips anyway with enough to grab. But i have tried so many supplements as a teen to spur on and finish my breast evolution that i just gave up. I didnt realize i had pcos until an adult as well. Now i got body hair to deal with but vitex and red clover has been helpful to me although i dont take them concurrently. I do hope we get more research on this topic of how the genes mutate for pcos or “tuberousness” occurs in a human being. It may never be reversed but at least we could understand what in our environments are the root cause. The same way we know what coukd possibly be a carcinogen and such. Anywho, i looved this article and the comments. Please continue to share with us and fasciliatate these discussions.
    Xoxo

  32. Lisa says:

    My apologies: made a big internet sin and pressed send without proof reading.

    Acceptance*
    Okay*
    Facilitate*

    Thanks again!

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